Today has an interesting twist. About an hour ago my twins began to huddle close and whisper to each other about their play. As Keva joined them, she sat nearby & set to “work” adding her soft whisper to the group. Much of what they are playing is silent, and individual, with occasional sounds of plastic on wood or metal toy pans. An unusual & intriguing moment of childhood.
This picture says it all:
Happy 4th birthday, Baby Girl!
Love you bunches!
This week, our children’s hospital featured a post on their blog about things you can do to support a parent of a child with special needs. The post stimulated me to write about what I wish for for my birthday:
A wish list from the Mom, of kids with special needs
Does not include a teal blue box or collegiate-grade of tweeds
My dreamy gift tomorrow could cost nary a cent
A telephone, a short car-ride, and time with me is spent
A person with a weed-whacker who braves the overgrown
Who weeds the bed out front, and trims the flora sewn
Do you do laundry? Or could you play, be fun?
If you could sit & play a while, I could get some laundry done.
Can you pick up prescriptions? Almond milk? Vanilla for our cake?
If you brought meat & veggies o’er, I’d take the time to bake.
But you need not even venture out, to show me that you care
Reach out, e-mail, accept my child, remind me that you’re there.
This week is a “quiet week” – 4 days no nursing & only 2 doctor appointments, 1 for each twin. O sure, the doctor appts we are going to are genetics (results) and an ECHO with cardiology follow-up, but it’s only 2 trips in- and one of them I will have a nurse.
Maybe its just that the next 46 hours are covered with nursing. Maybe it’s that place of denial where a parent needs to live to get through the stress of waiting for testing to see if your 5 year old is suffering from pulmonary hypertension… Maybe. But this is my quiet week.
Awaiting lobster pita salad beachside with my youngest.
My kids really love the chorus to Bruno Mars’ song “Just the Way You Are”. They sing it in the tub, to each other & to random important individuals in their lives- including our pediatrician. The wording & tune may be a bit off but the sentiment melts your heart when one of their beautiful voices directs it at you.
On the way home from some doctor appointments on Friday, my youngest opens up in song, singing: “… cuz my bwuddah is amazing, just the way he iiiis…” at the top of her 3y.o. lungs.
To which my 5y.o. daughter, Adrien, replies: “Really? Really, Keva?? I don’t think so.” ( in a PERFECT imitation of my disdain when she does something out of bounds…)
Keva then begins a rendition to her sister, singing: “cuz Adrien’s amazing just the way she is…”
And Adrien replies during her song: “Now that’s more like it. That’s appropriate.” ( to incredulous jaw-drops from both the nurse & I…)
Then she adds: “Singing to your ‘bladder’ is not appropriate. Sing that to people.”
<swerving in traffic as we roll with laughter>
Basekamp Laundry Mountain 