The tapestry of the life of a medically complex family

Archive for the ‘ROFLcopters’ Category


We have a stuffed elephant about whom we are writing a family book. At some point, I’ll tell you more about it but for now I have to share my youngest’s page from today- before I fall off the couch in my next fit of laughter. The text reads:
Elephant walked to the other counter and cleaned up after the mouse.


Note the green sponge in elephant’s hand & giant mouse excrement…

Dress up

Today we pulled out the dress-up basket again. I had forgotten how much fun 4&5 year olds have with just a few costume pieces. Tav was so excited to see the new “Prince” costume & try it all on. Keva chose Eeyore & immediately began acting as the Prince & Princess’s pet. It was too cute for many words- but this photo captures some of it:


My “Wing Girl”

This morning, our very handsome overnight nurse came in for a day shift. While the kids sat at the table, my youngest looked across the table at him & said:
“Let me see your hand.”
The nurse obliges her, smiling, raising his right hand and turning it for her to see both sides.
She says: ” Now show me your other hand. I wanna see if there’s a ring.”

Laughing & blushing he brings his other ringless hand up for her to inspect.

That’s my Wing Girl.

Sunday as it Should Be

Awaiting lobster pita salad beachside with my youngest.


Amazing Songs

My kids really love the chorus to Bruno Mars’ song “Just the Way You Are”. They sing it in the tub, to each other & to random important individuals in their lives- including our pediatrician. The wording & tune may be a bit off but the sentiment melts your heart when one of their beautiful voices directs it at you.

On the way home from some doctor appointments on Friday, my youngest opens up in song, singing: “… cuz my bwuddah is amazing, just the way he iiiis…” at the top of her 3y.o. lungs.

To which my 5y.o. daughter, Adrien, replies: “Really? Really, Keva?? I don’t think so.” ( in a PERFECT imitation of my disdain when she does something out of bounds…)

Keva then begins a rendition to her sister, singing: “cuz Adrien’s amazing just the way she is…”

And Adrien replies during her song: “Now that’s more like it. That’s appropriate.” ( to incredulous jaw-drops from both the nurse & I…)
Then she adds: “Singing to your ‘bladder’ is not appropriate. Sing that to people.”

<swerving in traffic as we roll with laughter>

My future husband

As most of you know, I am not now, nor have I ever been married. The topic of one day meeting my future husband comes up on occasion from family or friends and I regularly respond with “If he drops out of the sky…”  given my schedule and availability!

One evening at dinner my older daughter asked me: “What does your future husband do in the sky? Why does he fall down?”

Smiling, I replied: “He’s a pilot.”

To which my younger daughter chimed: “Like the kind with one eye?  …  Arrgggh!”    *covering her right eye with her hand*

Laughing. And still awaiting my pirate pilot’s arrival…


Random Stupid Candy Post

As though the title is not warning enough, I have to say if you are looking for a serious post on the joys or trials of our daily lives, today you will be sadly disappointed. Today’s post is not another of my inane and rhyming poems about life with trachs or reconstructive surgery- it is about M&Ms. I kinda feel like M&Ms are one of the greatest candies out there- no matter your taste preferences, desire for milk or dark chocolate, plain or filled, you can find what you want in M&Ms. You can open a bag and eat it through to the bottom, reach in and just pull out a couple, or fill your hand and leave the bowl. With children (if you’re inclined to share) there are colors to sort, crafts to make, counting which can be done.

Now here’s the part where the true me shines through. Keep in mind, you are here because you were invited, YOU are within the inner circle… you REALLY should KNOW this stuff about me: I eat M&Ms in a highly structured, ritualized manner. I adhere to strict rules and have been known to dispose of this beautiful candy when pieces or amounts do not conform. Here goes:

I eat M&Ms in even numbers. I cannot eat 1 or 3 or 7 M&Ms. If you are my friend and offer to share M&Ms with me, prepare yourself to provide an even number. If I am eating M&Ms and there is an odd number, I will offer any remainder to you- and perhaps some other even grouping along with it so as not to appear TOO ODD… If you choose NOT to accept my offer, I will promptly throw the lone offender into the trash or onto the ground where it may later attract one of our numerous younglings or some other vermin. I guess what I am saying is: say ‘no’ at your own risk!

When eating M&Ms, I prefer to pop them into my mouth 2×2, making sure not to ingest 2 of the same color at the same time. I have no rules about color combinations- red may be eaten with brown, yellow with blue, but sometimes I will organize so that I don’t eat the next one of the same color prior to eating one of all available colors in my hand- unless, of course, that would leave me with 2 of the same color in the end… Broken M&Ms are not eaten- nor “smidges” – the tiny misshapen drops of candy coating that are sometimes within. You may be surprised to know that a bag of M&Ms typically has an even number of candies within it.

At any rate, with all the things that are beyond my control in my day-to-day life, my M&M ritual brings sanity and predictability and control back to my side of the table. You all may think I am warped, that I have sucked the fun out of a one-time enjoyable candy for you. I challenge you to check out the way YOU eat M&Ms- odds are, it’s more predictable than you think…

What are your food rituals?