The tapestry of the life of a medically complex family

Parenting, in any situation, is a tough gig. Parents work hard to create the environment they want to nurture their child to becoming a thriving, capable adult. This environment includes encouragement, love & guidance or discipline and parents work hard to balance the structure to meet the needs of both (all) parents involved in raising their child.
In my home there is only one parent- and you might THINK that makes things easier- except for a few things… Because my kids have complex medical needs, they have nursing care provided at home & in the community during many of their activities. You know how Dad may have a rule that’s SUPER important to him & he may feel like he has clearly defined that rule- until Mom is out with him at a cookout & lil Johnny is flat out performing “the act” while Mom laughs about it with her friends?? (or vice versa) Well, envision THAT times 5. Why 5? That is the number of people, in addition to me, who directly supervise my kids on a weekly basis.
I agree that what the nurses do for my kids is not “parenting” them, but they DO “toe in” to that “pool” I’ve crafted which is supposed to bathe my kids in enthusiasm, kindness, grit & motivation. Consistency is just not a word which describes this life.

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