Today’s another wheezy day
Reduction in their time for play
Nebs on meds on nebs again
The Vest, some care, neb number 10
Top of hill there’s feeding woes
Slower than the sloth it goes
7 hours every day-
How long can feeds go on this way?
Love and hugs and play and song
Are fit between the meds along
Bedtime pause, sing one-on-one,
Then more nebs ‘fore day is done.
Lest we rest, we do not dare,
Pause in loving complex care.
Future hopeful, but unknown,
Days are PICU in our home,
Memories are made each day
Special moments on the way
Ne’er forget to cherish each
Love each other, this do teach.