The tapestry of the life of a medically complex family

Learning to “Dance”

A friend writes beautiful, thoughtful blog posts as she navigates the world each day this side of nearly unspeakable loss. The other day’s post was written about 13 qualities of a spiritual life. I think my definition of “spiritual” is more about general connectedness to what is beyond ourselves, but her list of qualities got me thinking & responding.

The one that struck me most is:

INTIMACY: If you had an hour to live and could only make one phone call, who would you call, what would you say, and why are you waiting?   Stephen Levine

My only response to this: no one. I would call no one. I would wake all my kids, take out all their favorite foods, sweets for Trachgirl- & not make Trachboy eat. I would wake them & turn on music & dance with them, sing with them, and read to them – & jump on the furniture with them (an especially big dream for my Youngest). I would want to expire in their tired arms’ embraces, listening to their laughter, seeing their smiles. Them, all 4 together. That’s all.

Who would YOU connect with?


Comments on: "Learning to “Dance”" (1)

  1. Thank you for your kind words!

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