By the time I have the help of another nurse, it will have been 129 hours since the last covered shift. The kids are on “sick plan” – 8 scheduled nebs a piece, with additional nebs for break-through wheezing or congestion. 29-30 nebs every day, on average.
Tonight, for the first time in 2.5 weeks, all 3 are getting oxygen saturation reading of 99-100%. Maybe I will be able to drop off to the “regular” of just 6 nebs/day.
5+ days. 150+ nebs. Our last time trying ‘baseline’, my youngest spent half the night at 89…
It’s exhausting but extra nebs is better than going in. Whatever this is, I want it knocked out of the park. A couple more nights, some really good days, maybe Monday.
There are reasons I haven’t written –
None of them good.
Each of them valid
In their own esteem.
Not sure WHEN –
Or if I’ll return –
I have been thinking.
I have been introspective.
My journey continues.
The challenge. The joy.
We are near healthy,
But whole & safe.
After a late morning albuterol/ ipratropium round for wheezing break-through, my kids began playing ‘clinic’ with the teddy bears from their beds.
As they prep my son’s bear for a ‘procedure’, my youngest picks him up, places him close to her nose & SNIFFFFFS deeply. “He smells TERRIBLE!” she says before stuffing him under her sister’s nose & asking her to smell.
SNIFFFFFF goes my older daughter. “Ew! This bear smells GROSS! Smell it Momma!”
As she hands me the bear, I realize the leg is moist. Keeping it a good distance from my nose, I sniff lightly.
UGH!!! Vomit. The bear’s leg smells like VOMIT.
Thanks, GERD & overnight GTube feeds. Thanks very much.
My Dad has been dead 18 years this summer. He had a favorite sweater I remember especially well. This week I made it into a house-warming birthday gift for my youngest brother. Favorite sweater, handknit by Mom, will soon become a coordinating item. I love to upcycle.
The kids had some adventures in creating this week too. There are Valentines to deliver and Tic-Tac-Toe to play. Trachs, kids & hammers…
My kids declared today:
“National Bitty Baby Day”
They have been playing with their Bitty triplets all afternoon. First they dressed them in matching outfits & “took them swimming”. Later the Bitty 3 dressed as ghosts using the doctor coats my kids have. Now the dolls are ill and receiving skilled medical care from my 3 little pros. So glad they are happily amused.
My three youngest sit talking at the table.
My son says: “When I’m big, I’m gonna marry Momma.”
I ask him why- what about me makes him want to marry me. He says: “Momma, you’re LOVELY!”
His twin plans to marry the son of one of our former nurses- because the nurse “will be too OLD to marry me when I’m grown up”.
My youngest states: “When I grow up, I’m gonna marry (my biggest brother). I’m gonna grow up … & MARRY HIM!”
When asked why, what is he like that makes you want to marry him?
Her response: “Bacon. He’s bacon.”