The tapestry of the life of a medically complex family

Archive for the ‘Memories’ Category

Outdoor Play

Getting outside more has been a goal of mine for some time now. This week, I finally got some time with a nurse so that I could go get the final pieces of wood and hardware for our latest outdoor adventure. THESE are the faces of SUCCESS!

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First Poems

In trying to participate in the NaBloPoMo Blogroll this month, I guess veering from their first suggestion mightn’t encourage me to keep writing this month. My first poem I remember memorizing may have been “Hickory Dickory Dock”… It has been a very long time. I have memorized so very many and written many more since then.

When I was a child I went to a parochial school so we memorized many poems, prayers & other religious  litany. During my time in elementary school, I also wrote many poems. I remember being the student chosen to write a poem for an Easter service, and having it done up in calligraphy by our class’s most talented artist.

One of the poems I wrote in elementary school was accepted into an “American Poetry Anthology” when I submitted it during late elementary or early high school. I don’t remember which one and have not ever seen a copy of the text but I remember the poem. Short and reflective of where I was in my life at the time:

This little flower, Alone on a hill

Watching & waiting for a message of God’s Will

Be like this flower, Ye children of God

And watch, It is not a bed of flowers on which your feet trod.

[Gretchen Kirby, circa 1976]

 

 

Happy Happy Birthday #6

My twins celebrated their birthday today. They woke early and had a busy day of:

  • Ice cream for breakfast
  • Opening presents
  • Testing new toys
  • Playing outside
  • Gettting reading to “party”
  • Having pizza, cake & ice cream with FIVE of our wonderful Home Care nurses- including 2 who are no longer working here
  • Getting to bed late

Let’s hope they sleep in in the morning. Be well & goodnite.

Those I Love

It’s been hard to keep up with blog prompts for this month of blogging every day! Today they want to know who I love- well, I’ve already written so much about them I can’t imagine you’d be very surprised. My kids are the most wonderful people to ever happen to me.  🙂 My oldest  is a terrific emerging adult. He’s back in college and working his way into a routine with it. He still makes me smile whenever he Skypes his younger brother & sisters – chatting with them about nothing, the objects they can see in the room behind him or answering all their young sib questions.

The twins are doing wonderfully well. Health is still an area of challenge but I’m able to keep these loves of mine home with the help of some terrific home nurses. Growth is a slow & lengthy uphill battle, but they are happy & developing. Can’t wait for their sixth birthday in 2 weeks!

My youngest is a love all her own. She is compassionate & caring and my companion on all errand runs. She adds a level of noise and energy to the playroom. I love her laugh and smile. My kids warm my heart every day.

A Craft in Photos: Warm HUG

Our warm hug:

This is the blanket we made for the nurse who left. Each time she uses it, she will be getting a group hug from 3 little ones who really, really love her. Flannel hugs on a double-fleece blanket- warmth & love. 🙂

Laughter

We have a stuffed elephant about whom we are writing a family book. At some point, I’ll tell you more about it but for now I have to share my youngest’s page from today- before I fall off the couch in my next fit of laughter. The text reads:
Elephant walked to the other counter and cleaned up after the mouse.

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Note the green sponge in elephant’s hand & giant mouse excrement…