The tapestry of the life of a medically complex family

Archive for the ‘Memories’ Category

Building & Beaches & Birthdays

My beautiful baby got big!!!!!!

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Blueberries 2013

Although it’s rarely easy, I work to give my kids age appropriate experiences. Today we packed up oxygen, suction, cooling vests and the wagon to head off to the blueberry patch. Trachboy picked nearly a half hour before needing the cooling vest & to sit in the wagon. The girls fared better, Youngest sat to pick but moved between rows pretty well considering. Trachgirl even handled being buzzed by a bee.
Trachboy needed suction a few times and an oxygen increase to 1.5Lpm to keep going (seated) but he ate more than the girls while there in the bushes. Lunch was delicious with the fresh blueberries in our homemade yogurt. Enjoy the photos.

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Another FIRST

What a fun family first!

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Eostre 2013

A day of fun & family.

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Patrick’s Sunday

PEACE.

Play
Ease
Adventure
Childhood
Experience

PEACE

Our St. Patrick’s Day adventure- on a bitter cold New England day.

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7 days of 7 year olds

Another milestone: 7 years old. Sometimes in this life, you forget time keeps marching. Sometimes you feel like you won’t make it through. But then you arrive: 7 amazing years!

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Another Socratic Sunday

“Nature does not hurry, yet everything is accomplished.” – Lao Tzu

OK. Maybe not laundry, or vacuuming…

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