The tapestry of the life of a medically complex family

Archive for the ‘poem’ Category

Patrick’s Sunday

PEACE.

Play
Ease
Adventure
Childhood
Experience

PEACE

Our St. Patrick’s Day adventure- on a bitter cold New England day.

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Along for the ride

There’s no one here along for the ride

No face, no heart, who walks alongside;

There’s no one here along for the ride

Whose brain I can pick, whose ear I confide.

There’s no one here along for the course

When possible maladies hit with such force;

There’s no one here along for the course

Who adds their perspective or rallies the horse.

There’s no one here to ride this with me

To bear part the burden, to set worry free;

There’s no one here to ride this with me

To understand, fear, or care constantly.

There’s no one here, supportive of me,

To withstand the ups & the downs of the 3;

There’s no one here, supportive of me,

Who I can rely all tiresome journey.

There’s no one here along for the ride

Who helps set the pace, keeps vigorous stride;

There’s no one here along for the ride

Deserving a hit from the “may be” landslide.

Seriously- Romance?

I sign on for the National Poetry Month Blogroll at BlogHer and their prompts already have veered far from my life. The best romantic poem? Seriously? Who reads those? More importantly: who CAN read those??

Don’t get me wrong, I have LOTS of love in my life- just none of a romantic nature. My children love me to the moon & back, & I them. Some of my nurses love me, in addition to loving my kids. They show this through their thoughtful encouragement for the day-to-day, in baking for friends & being sure to bring me some, by repairing a broken screen door during the overnight shift. My kids’ biological and adoptive families share love with us all the time, but “romance”- LOL

At one-point, a few friends suggested I post a profile on an online dating site- they even began crafting my profile description. In keeping with the “spirit” of the BlogHer challenge, and honoring poetry in my posts all month long, here is my version of my poetic personal ad:

SWF likes:

Leisurely strolls through hospital halls

Internet shopping, not crowd-filled malls

Long, 3-4 hour, grain-free meals

Ortho-clogs, ne’er spikey heels.

 

Tall & smart & kind & stressed

Medical emergencies at her best

Many children at her knee

Happy, smiling, busy bee

 

Seeks:

Kind & strong & loving man

Medical training a plus my friend.

Helicopter pilot a valued skill-

Quick land on hospitals for a thrill-

Soft of heart & quick of mind

Cherished partner love to find.

 

Not thinking it would work, but there it is: romance. :)

So Happy Its Tuesday

Today’s another wheezy day

Reduction in their time for play

Nebs on meds on nebs again

The Vest, some care, neb number 10

 

Top of hill there’s feeding woes

Slower than the sloth it goes

7 hours every day-

How long can feeds go on this way?

 

Love and hugs and play and song

Are fit between the meds along

Bedtime pause, sing one-on-one,

Then more nebs ‘fore day is done.

 

Lest we rest, we do not dare,

Pause in loving complex care.

Future hopeful, but unknown,

Days are PICU in our home,

 

Memories are made each day

Special moments on the way

Ne’er forget to cherish each

Love each other, this do teach.

 

4-3-2012

First Poems

In trying to participate in the NaBloPoMo Blogroll this month, I guess veering from their first suggestion mightn’t encourage me to keep writing this month. My first poem I remember memorizing may have been “Hickory Dickory Dock”… It has been a very long time. I have memorized so very many and written many more since then.

When I was a child I went to a parochial school so we memorized many poems, prayers & other religious  litany. During my time in elementary school, I also wrote many poems. I remember being the student chosen to write a poem for an Easter service, and having it done up in calligraphy by our class’s most talented artist.

One of the poems I wrote in elementary school was accepted into an “American Poetry Anthology” when I submitted it during late elementary or early high school. I don’t remember which one and have not ever seen a copy of the text but I remember the poem. Short and reflective of where I was in my life at the time:

This little flower, Alone on a hill

Watching & waiting for a message of God’s Will

Be like this flower, Ye children of God

And watch, It is not a bed of flowers on which your feet trod.

[Gretchen Kirby, circa 1976]

 

 

Birthday Gifts for an SN Parent

This week, our children’s hospital featured a post on their blog about things you can do to support a parent of a child with special needs. The post stimulated me to write about what I wish for for my birthday:

 

A wish list from the Mom, of kids with special needs

Does not include a teal blue box or collegiate-grade of tweeds

 

My dreamy gift tomorrow could cost nary a cent

A telephone, a short car-ride, and time with me is spent

 

A person with a weed-whacker who braves the overgrown

Who weeds the bed out front, and trims the flora sewn

 

Do you do laundry? Or could you play, be fun?

If you could sit & play a while, I could get some laundry done.

 

Can you pick up prescriptions? Almond milk? Vanilla for our cake?

If you brought meat & veggies o’er, I’d take the time to bake.

 

But you need not even venture out, to show me that you care

Reach out, e-mail, accept my child, remind me that you’re there.

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