The tapestry of the life of a medically complex family

Thankful 2010

As we cruise through the first week of November and the challenges and concerns about health for the trifecta and the round-out of the fantastic foursome… I want to take a moment to celebrate the things for which I am MOST thankful.

I have 4 beautiful kids who, regardless of their medical needs and challenges, I love for the sunshine and joy they bring to me. My eldest has struggled with being too young to manage the stress of a first year of college at this time in his life. Thankfully he had the strength to talk about it and eventually withdraw before increasing debt without passing coursework became the outcome. He is a child who lets me know that I can succeed in parenting. He frequently shows the compassionate and nurturing side he has developed over the years when he sits with his young siblings and talks with them about their interests or gives them “pony back rides” in the playroom. I achieved “random hug” status last week by completing the simple task of remembering his Lucky Charms when I went to the grocery store. These tender moments remind me that his wonderful self is still in there, surfacing and diving as he figures out how to navigate his transition to adulthood.

With the twins, I am thankful for their continued resilience, for their seeming increased ability to ward off illness. We have had multiple doctor visits in the local children’s hospital and have been able to avoid contracting the usual “inpatient” events of years past. With my daughter, she has developed a bond with her little sister that involves daily interactive play and nurturing encouragement. She is more likely to be cautious around her trach and has developed MANY pre-reading and early math strengths over the last year. My son is gaining weight (finally!) and his physical and language/communication abilities have improved significantly. He regularly tells his sisters, brother and I that he loves us, participates much more in group play and has begun to be able to mediate his environment better using language over physical means <– oops! SPED speak for less hitting & grabbing, more asking/telling!

My youngest continues to have her physical and medical challenges of unknown diagnoses but she lives her life with sunshine and much humor. Her personality has really grown SO much this year- she is regularly saying goofy/funny things and bobbing her head back and forth like the comedian she is! She has been mostly healthy this year as well and we have testing scheduled soon which will hopefully answer a few of the ongoing nagging questions.

I am thankful for my own health and strength to do all that I do- I DO wish I could do it all a little more calmly at times, but glad I still get it done. I am SO thankful for the healthy and skilled team of nurses we have had over the last year: Alicia, Bass, Diane, Meghan & Sue are resources which have kept my kids on the path of good health without an inpatient stay in 2010 thus far. (Do NOT tell the fates…) The skilled and caring team of doctors that support our efforts also cannot be over-appreciated. I have been blessed SO much by their thorough and thoughtful treatment of ongoing challenges, and quick response to emerging issues so they do not progress to major complications. Our doctors are the best!

It has been another long year but I am thankful for all the blessings that have come along! HUGS to you & yours!

About these ads

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Follow

Get every new post delivered to your Inbox.

Join 65 other followers

%d bloggers like this: